Homelessness and Death Caused by the Social Security Disability Backlog
94The Agonizing Wait for SSDI Benefits
Woe to You if You Become Disabled
Reaching unprecented levels, the backlog for new Social Security Disability and Supplemental Security Income cases is worsening instead of getting better. Since 2000, the backlog at the Administrative Law Judge (ALJ) hearing level has more than doubled from 310,000 cases to 765,000 cases. Although the waiting time varies between states, currently, the average waiting time is amost 500 days. Consequently, many applicants lose everything they have or even die before their ALJ hearing.
Appeal Process
How the Social Security System Works
According to the SSA, the definition of a disability is "You cannot do work that you did before. We decide that you cannot adjust to other work because of your disability; and your disability has lasted or is expected to last for at least one year or result in death."
If you file for disability, approximately 60% of initial applications are denied. If you file an appeal, the next level is called the Reconsideration level. It is a paper review by a different disability examiner. The denial rate is even greater at this level. Approximately, 80% of the cases are denied. If you appeal again, the long wait for an Administrative Law Judge (ALJ) hearing begins. Although over half of the denials are reversed at this level, by this time many people have suffered from irreversible damage. If you appeal the ALJ's decision, you case goes to the Appeal's Council. At this stage, there is a one year minimum at least. Like the Reconsideration Level, it is basically a paper review of the legality of ALJ's decision and any new evidence submitted. Like the Reconsideration level, the denial rate is approximately 80%. The last appeal is at the Federal District Court level. At this level, the case is either awarded or sent back to the ALJ with instructions.
Dying Before SSDI Benefits are Awarded
Even before the latest increase in cases, it is no exageration that people die before they recieve ther rightful benefits. Below are a few examples.
- Mark Wild discovered he was a diabetic at 19. Throughout the years, his severe diabetes required frequent hospitalizations. Although he tried working and going to school, his illness and fequent hospitalizations interfered. Massive medical bills, no life outside his parent's home, hospitalizations, and fear of yet another SSDI rejection weighed heavily on his mind. A few days before his hearing, Mark was missing, but his watch, ring, and a bullet lay on his nightstand. Two days later, Mark's attorney called and told his mother he won his case without a hearing. Two hours after this call, Mark's parents were visted by a deputy sherriff and chaplain. Hunters found Mark's body dead in the woods from a self-inflicted gunshot wound.
- A Key West Florida woman was shot five times in the liver and abdomen by her husband. As a result of the gunshot wounds, she had related disabilities and chonic obstructive pulmonary disease. Her claim was denied in April 2006. In March 2008, she had her ALJ hearing. She died within the same the month. SSA approved the case after her death.
- A Charlotte, North Carolina man was a pipe insulator for fifteen years. At 52, he had congestive heart failure, chronic atrial fibrillation, pneumonia, obesity, and peripheral artery disease. He applied for SSDI in March 2006 and was denied. In November of 2006, he requested an ALJ hearing. He died in August 2007. Four months later, SSA approved his disability without a hearing.
For every publicized case of the devastation caused by this situation, how many more unpublicized cases are there?
Don't apply for Social Security Disability Benefits without being informed!
Reasons for the High Denial Rates on SSDI Applications
Many people wonder why there is such a high level of disparity between the rates of approval on the initial applications and at the Reconsideration levels compared to the high reversals at the Administrative Law Judge hearing levels, Although no one has an exact answer, these are several theories.
- Denials based on pain - Many disabiity cases are based on pain. Since pain is subjective, it is hard to determine whether the quality and intensity of the pain are disabling.
- The effect of malingering - Some people think Congress believes if people are given the opportunity, they will choose disability over working. In my opinion, this is absolutely ridiculous! No one in their right mind would rather go through the anxiety, depression, and economic hardship of trying to win a disability case compared to working.
- At the initial application, not as many people have attorneys in comparison to the Administration Law Judge hearing level. Furthermore, the extra length of time between the initial application and the ALJ hearing provides an opportunity to develop a stronger case.
- Compared to the initial application and Reconsideration, at the ALJ hearing, you have an opportunity to present your case in person. Since the ALJ can see you and listen to you, it may give your case more credibility. However, if you do not have legal representation, your odds of winning your case are markedly less. Furthermore, the legal fees cost either 25% of the back money owed by SSA or $6300, whichever is less. Tell me, do you think it is right a person who is so sick they can't work anymore should have to hire an attorney to collect what should be rightfully theirs?
Reasons for the Backlog at the ALJ Level
In addition to the high denial rate on the initial applications and at the Reconsideration levels, the wait for an Administrative Law Judge hearning is unacceptably long. Furthermore, this is not a recent problem; it has been going on for years. Some of the reasons for this are:
- Years of underfunding and a decrease in support staff - Until the Economic Stimulus package, the agency had staffing levels below those seen during the Nixon Administration.
- Worries about malingering has led to tighter scrutiny.
- Litigation and financing shortages prevented hiring new Administrative Law Judges.
- Changing demographics -The baby boom generation has led to an increase in disability claims.
The Economic Stimulus Package Fails to Decrease the Backlog
In addressing the average 500+ day wait for an ALJ hearning, the economic stimulus package gave SSA $500 million to hire more staff and judges. However, even though the backlog decreased for six consecutive months, it is on the rise again.
Since October 2008, the number of people waiting to have a claim processed has risen by 30%. Furthermore, according to Allsup, the average time to process an initial disability claim will increase by 20% this year. Adding to these problems, on the state level, at least 10 states have furloughed hundreds of employees that process these cases because of budget shortfalls. In fact, California has furloughed more than 1400 workers for three days a month through 2010. Even more disheartening, on the federal level, since administrative expenses are running short at the end of their fiscal year, SSA has suspended all hearings for people seeking disability benefits during September 2009. When people were already facing homelessness and dying before they recieved their benefits, these actions compound the problem. Hence, at least for the SSDI program, the economic stimulus program was a bandaid that didn't stick.
Facts to Consider
Before this article becomes another one read and forgotten, consider these facts:
- Three in ten people will become disabled before they retire.
- According to the Census Bureau, 18% of Americans have some form of disability while 12% have a severe disability.
- Sixty-five percent of Americans are living paycheck to paycheck. According to a report by MetLife, 50% have less than one month's savings for emergencies, and 28% have less than two weeks of emergency savings. Even people making $100,000 or more, 28% still had only one month's savings.
- Forty-six percent of all home foreclosures are caused by disability and half of all bankruptcies are caused by medical reasons.
Conclusion
Life can change in a second. Considering the statistics, you, a loved one, or someone you know will more than likely become disabled. Furthermore, will you or they be able to survive this torturous, agonizing wait without financial devastation or even a worse fate?
Think about it. If you have children, you may qualify for AFDC. However, more that likey, a disability applicant's income was far greater than AFDC benefits. Furthermore, if you're single without chldren, you don't even have that option. Can you imagine trying to pay all of your bills and survive month after month on minimal or no income? Furthermore, you've already been denied for disability benefits twice, can you imagine the underlying fear that you will be denied again?
If you are denied again, you would either have to reapply for benefits again or appeal to the Appeal Council. Unfortunately, the Appeal Council is similar to the Reconsideration level since they review the legality of ALJ's decision and any new evidence. Most of these cases are ruled in favor of the judge, and an appeal is then made for a Federal District Court Review. Most of these cases are either sent back to ALJ or approved for benefits. Either way, if you appeal the ALJ's decision or you start over again, you are looking at a long, long time before any decision is made or benefits are awarded.
Unless you have gone through this struggle personally, there is no way to imagine the anxiety, fear, and despair the current system inflicts. It is both inhumane and cruel. This problem has gone on for far too long and destroyed too many lives. Tragically, it will continue even longer unless the public gets more involved. If you care, contact your elected officials today.
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This is the same federal goverment that wants to take control of our healthcare??????????
I was recently healed from my former disability. My last SSDI payment is in November. Hopefully, that makes room for y'all. God bless you.
Speaking of DYING before benefits are even given, my husband finally got his SSDI in May of '08. HOWEVER, because he has pushed himself to work despite his being born with a severe case of Spina Bifida, he earns too much monthly for medicaid. SO, the government makes you WAIT
2 YEARS FOR MEDICARE AFTER YOU GET SSDI!!!!!
Needless to say, last month he had to have emergency surgery (actually surgeries #53, #54 and #55 of his life and he's only 48!!!)
So, he almost died before getting health coverage. Think they don't HOPE you die before giving you disability in full? It's obvious!!!!
I was one those that waited six years without an income. I honestly believe that SSA thought that if they kept denying my claim that I would give up and move on, but I was so, obsessed with my ailments that I couldn't focus on anything else. Still, it took prayer and leaning to my US Senator's office to finally get things inorder. Sadly, my SSA credits ran out and I could only qualify for SSI. I think that is the real reason behind why the denial rate is so high, because it saves the department money. I also dicovered that your grief can continue long after approval for disability benefits if you get targeted for SSA third party "Plausible Denial" harassment, in which your property is vandalized, stolen or tampered with by people you do business with or trust. Like bankers, grocerers, mail and delivery people, neighbors, pharmacist, landlords and property mangers, law enforcement, just to name a few all covering and snooping and tampering at SSA request. It's a shame, really, that SSA will stoop to this level to look for reasons to controvert and deny your benefits before and after you have fought so hard to get them. It drove me to acquaint myself with the law. SSA's Program Operation Manuals are available online at their website for all those who would like to review them.
I have been waiting for approval for my Disability claim for almost 5 years now. I am on my second round - it has been a year and a half this time around. And still no ALJ hearing in sight...
I have lost my home and everything I owned. I have had to do without medical care and without my medications almost all this whole time. No doctor will take me with no money and no insurance. I have racked up countless trips to the ER at about $3500 per occasion, on needless ambulance trips and ER visits that could have been avoided if I had only been able to get my breathing medications.
I have been too sick to work for over 5 years. I have no income whatsoever. And if not for a former employer, I would be homeless and living under a bridge right now.
I am too sick to work. There's no way I can do it. I wish I could. I am an RN who could be making $35 an hour or more. Why would I want Disability of $783 a month or SSI of $674 a month instead of what I could be making if I were not sick? Get real! I could maybe try to live on that little bit of money if only I could just get it.
To add insult to injury, they have now reduced the amount of back pay you can receive to only one year. And you do not get it all at once, you get a bunch of smaller payments spread out over several years, so it does you no good, and does not help you get out of the hole you are in. Most of the first back pay goes to the lawyer.
You did a great job on this article, and every single word of it is exactly the truth.
I am so sorry to hear of this long waiting time . I have applied for SSD in 11/2009 and have already rec. two denials and I am expecting a denial at the Judge level also. My problem is lung damage from radition treatmens,with difficulty breathing . I had open heart bpass also because the radition treatments from hodkins lympoma. I am an RN and I have missed many,many days. The employer started giving me problems so I had to leave.In any case I know my hearing is at least a two year wait, I am lossing my home, and the electric co. is ready to shut us off. Would writing a Senator or Congressman help to get an earlier date with the judge?
Seaamist thank-you for your reply. I will write to my Senator. How does SSD expect you to work, you would be out of work more than you could work related to the pain and depression . I do not know of any job that will keep anyone who misses alot of work for what ever reason. Therefore I would love to ask SSD would they hire us and let us miss days of work for our individual illness. Of course the answer would be no. The records are there, they see that you are in pain and depressed. This should be simple . Give you your SSD. I wish you well and I will pray for you also. Linda
There has to be a better system. I am on disability for MS and neck disk problems in 2003 which is 7 years ago. Doctors ruled out MS but now I have failed neck surgery (Cervical Stenosis). I am afraid of this system and tried to go back to school that way I do not get denied in review. I struggled with severe pain and had to give up. I am 56 and afraid that they will say I can do my old job which is skilled although I have not done that job in over 11 years. This system makes you afraid to deal with them and force choices that are not good for your health.
Hi seamist: I am still in the same boat. Still no date for the ALJ hearing. It is totally ridiculous how long they make people who are too sick to work go without health care and an income. It is criminal. Thanks for your prayers, I'm sending some your way, too! We need them. Only a miracle can help us.
I lost my home,car and pets because it took so long to get help. I wasn't able to work tried to very hard. Now I rent a room it is sad situation.
It's a damn shame that i work all life an the deal was if you get sick we got your back.But you file for this bullshit they hope you die i need heart valves replacement and the longer they wait it's damages my more liver that's been since 12/2007 i file 8/2009 have not heard nothing from them,
My husband has died of the disease for which he applied for disability for, during the appeal period. I am angry that he tried every day to get up and go, even though he was so sick. He said that the letter from social security told him that he was able to work. How blackly funny. I'm not for sure what to do now. I can't get anyone from Social Security to call me back.
After reading alot of these cases that have gone absolutely nowhere, I am even more depressed. I filed in 2003 after a series of job losses and employment problems. I was agoraphobic but I filed because I suffer from Chronic PTSD and Severe depression. I also have degenerative disk disease in my back and osteo-arthritis in my knees and now I feel it in my fingers. Like most of those who have filed and cannot go to a doctor for pain but just emergency rooms I started finding a way to get Rx pain pills and was caught without a bottle for them and got a CDS case. I went to the extreme I know. I am ashamed and marked now. I have been to Rehab and now I just have to suffer through the pain and get more and more resentful that I hear of people who have the same problems as I or less that have been awarded their claims and I have been waiting 7 years. I too have lost my home, car, beloved pets and a husband (to divorce). I am just sick of this whole mess and yet what else can you do???
I really pity anyone having to go on Disability...Very humiliating, degrading experiance that you have to have your life held by a bunch of strangers that have no idea of the pain you are going through? I worked 20 years & because of a accident, I had to file & had my credits. Years of hell went by because denile after denile I gave up But filed again. It took 7 years & lost my 10 year credits? Then I was approved & pushed on S.S.I. How the hell do I live on $674.00 a month? Thank God for family. But Social Security made me lose thousands in benefits from working. The whole program should be changed for us disabled people to have a better quality of life.
Homeless shelters can be a last stop for some people. Some homeless shelters allow people to stay for only 60 days. During this time the people in the shelter must find employment. They can stay longer if they have gainful employment. The shelter keeps part of the homeless person's income to pay for rent for future housing.
However, it can be very difficult to get a job when you have a homeless shelter as your mailing address.
its unfortunate but the reason the system is so slow is becasue once people get on it they are on it for life. I had a heart attack last year and several mini strokes this past summer, I suffer from Congestive heart failure , my prognosis is not good. Doctors suggest I have a max of 1 - 2 years unless I have a heart transplant. I know I will never have the transplant becuase I don't have medical insurance. I've lost everything waiting on SSDI.and even if I do get it $1000 a month will never replace the $10,000 a month I made while working. I'll never have my own home again or live a normal life and can't belive I'm in this situation.
I'm angry, livid at the system, not because its taken so long for me but because I see so many fat lazy people collecting SSDI. Two years ago my brother invited his co-worker and wife to my home for dinner. He was more than 350 pounds and his wife was pretty close to him. When I asked her what she did for a living, both were pretty quick to say she's on disability. When I asked her about her disability, she told me she had back pain,. As I stood in the kitchen making dinner, I asked her if she wanted a muffin hot out of the oven. She said yes, as I handed her the muffin, she asked me for some butter for the muffin, I gave her a few slices and she asked if she could have the whole container. I stood there and watched this lady literally eat four muffins and an entire container of butter. I was floored and thought what a big fat pig. This lady was no more disabled than an active athlete. I asked her if she would ever go back to work and she told me no way "we have everything we need and are happy with the 1 income and the disability".
I think the sytem should go back and adopt the same requirements as the Welfare system. Provide a system to help people go back to work rather than letting them stay home and collect ssdi. More than 70% on SSDI at somepoint will perform some work and earn money whether honestly or under the table. Give these people that have minor ailments the opportunity find real jobs and contribute to society. Many won't work for fear of losing their benefits and that's understandable considered whatr they have to go through to get them in the first place.
I believe if people were allowed to collect the SSDI while working full time towards career goals the system would be diffeerent. We should have a system in place with incentives to work, earn and pay taxes even after approved for disability. Some people of course will not be capable of returning to work, but unforturnatley there are so so many that can return to work, but once they start getting that free check.....
I have Hepatitis C and Diabetes and getting out of bed is a huge chore, I migrate to the couch and lay there before I have to go to work, My co workers ask why Im sick all the time and look like crap, I make up stories because I don't think It's any of their business, After reading these stories I realize I'll probably die before I get disability!
SSDI is like an out of control frieght train... It is no wonder why obesity rates are on the rise... Severe laziness & people looking for free rides and early retirement @ age 21 to sit on their asses and net all day. Anyone can claim they are experiencing chronic pain.. Add a bunch of bogus diagnosis and appeals, you got your self disability !!! You should be ashamed being on disability other then the probably 3% of legitimate disability cases... If you have to sit in one of numerous forums discussing how you can get it, then rant and rave about being on it and feeling like you hit the lotto or have retired early, more cases should be denied. The whole appeals and lawyers to get approved is an absolute joke. This is the bullshit government should be regulating.
Well i understand alot of their rules, but i also disagree on alot of it too i say that because of what i went through, see im 23 i had broke my hips startn at tha lower part of my spine down to my hips, i mean a cast from my waist down had to learn how to walk all over again n i applied and was going through the steps they had me goin through well the lady i talked to from the determination office had told me if i couldnt make my appt. she would reschedule my appt. and i couldnt miss this one well i never had got any mail saying she did well i was in a moving period so i call her and ask her has she sent out those papers, and she hadnt sent them so i told her i had moved so she had upgraded my files and that was that, well the next few days i had got letter saying i was denied because i missed my appt. ,after the fact she said she was going to reschedule my appt. now im going through alot because i cant work
Our country is terrible now.I myself worked all my life Iam alomst 51 yrs. and cannot work.I was let got due to the fact I could not physically do my job anymore and it was a sit down job.Sad to say still waiting have an attorney and time is short and cobra is alomst out and funds as well they dont care they keep the money when people die thats the plan.No wife or husbanc keep the money and tell eveyrone no until they die so so say they stories hear depress me evan more...
I have MS and have been denied twice. I saw a ALJ last week so now I'm waiting to see what his decision is. It is so frustrating. I have 7 years of medical evidence and I'm still having to wait for a decision. The USA is the greatest country to GO BROKE AND GO WITHOUT. Too sad...
I had my hearing after the long wait to find I get wait another long wait for a decion such crap so sick of it now the kicker I have copd and heart trouble caused by the lung deseas th judge looked at me and said copd well when will you get better i said i wont ever get better he said oh bull you need a new doctor they filled your head with crap!!!!!!!!!!!!!!!!!!!!!!!! hey the judge is now a doctor too come im ready to protest and fight who wants to start a raley and fight this crap
My husband just received his letter from the hearing - it was "unfavorable"... the letter seemed to contradict itself throughout- it would say that his condition is severe and is listed as one of the disabiling conditions but basically it's now severe enough for them. It said that they gave moderate consideration to what our family doctor had provided, no consideration to what the orthopedic doctor said and that according to their doctors - who have NEVER examined my husband, the pain he has from his severe condition does not preclude him from all jobs. The vocational specialist at the hearing even testified that my husband can not perform any work based on his condition. I just don't get this - now we have to go to the next level and it is my understanding from all that i have read that they very seldom if any overturn the hearing results. This is so frustrating!
I am wondering why we have so many disabled people in America? Is safety and health at a all time low. Maybe the lack of health care is keeping us from preventing some of these things. Personally, I believe half of it is poor nutrition that has been bought and sold and approved on research done by the people who sell this life style to us. We have a health crisis in this country that is bankrupting this nation and the World eventually. Bought and sold since birth by television most of you probably choose not to believe it.
I have been waiting 2 years now. They turned me down two times, now I'm waiting for a court date. I have mental issues and ALOT of trouble leaving my home! I do have a lawyer and have had one since day one. With all my depression and panic attacks waiting and waiting is very stressful on me and my wife also. I dwell on my health 24 hours a day.. Heart attack fears ect. I find I dwell on my Ssdi case also.. They say I can work? But I can't even go shopping for food! My wife needs to do all things that need to be done outside our home. I feel if I'm turned down after a jugde sees my case I will have a break down. That I won't be able to recover from this time.
I was denied for the third time and my attorney said that it is all he can do now that I would have to find someone else because he does not handle any civil court cases, so now whatdo i do after waitng for four years and still be told that i don't qualify.
I've been denied three times now the pain sadness and rejection that I have received with the whole process has lets say been overwhelming to say the least. I first went with an advocate which informed me that at the age of 30 i needed to apply for not only social sec disability i also had to apply for ssi since a car wreck at age 16 had been the root of my disaility and so we did then after appeals she quit on me due to family problems when my next appeal came they sent the papers for my father not me to appear i never knew it was for me after several attempts to get my advocate release me time ran out no lawyer would take my case i have degenerating bone disease condgestive heart disease tacahardia high blood pressure ahthma
i am in so much pain all day every day now at age 41 i was again denied after another app and appeal some judge denied me again due to some chavez law my attorney wrote me and said all though he believes i disabled he wont appeal but to come see him and he will file again this was 2009 im just ready to expire i cant keep fighting any more if any one has some thing to help me out plz let me know asap thnk uuuu
This is a very good hub. There are too many people relying on SSI to pay their way. Those of us nearing SS retirement can't even rely on the retirement we paid for. There is always a job for everyone. We just don't have the system in place to look for meanful employment for people. There is a saying, "Employment is nature's physician". Discrimination is a big issue in this country at this time. People in human resources for corporations and company's don't even call references or try to put people to work. Your moral and your self-esteem would be bolstered 10 fold if someone would give you a job to do; that you could earn your own way. You are very Right. People are dying because of neglect. May God Bless you.
My husband fights this same battle. If not for the Larry King Cardiac Foundation he wouldn't be alive today. Never mind the taxes he's paid since beginning work at age 17, age 15 for me. This isn't the same country I have always loved. It takes care of everyone except Americans.




















Windtraveller 2 years ago
The idea that people would rather be on welfare than have a job is ludicrous. Nothing gives a person more satisfaction than to earn your own keep. Even in a nation like mine, where welfare is well organized there's no malingering. Given half a chance people want to have their lives be meaningful to other people.
Putting more judges on staff is like mopping up while you leave the water running: it's not going to help any unless the denial rates come down. That involves trusting your own people.